2/9/2011

We just received a call from Maggie's GI doc saying that Maggie will be getting the gj-tube placed tomorrow. He wants to get this done so she will have some time to heal. Maggie will need to be put under general anesthesia to get this put in. Radiology called our GI and explained that he will not put this in unless she is under GA, he is not comfortable putting this in when she is not sedated. Her anatomy is a little different and she has not been super healthy so they are worried something might go wrong. We are not super happy that she has to be put under GA but know that it is probably best with her complicated history. When discussing how things will go once we have this in place and are using it, we asked about what happens if she still refluxes (which we are 99% sure that she still does) from her intestines into her stomach. He stated that there would be nothing else he could do for that part of her but at least we will hopefully be able to relieve some of her pain by getting the air out. We are happy that this could help her to be more comfortable but are really worried about this feeding problem. This is why we haven’t put the gj-tube in before, because we know that the feeding part would still probably not work so well but at least we can get her stomach feeling better this way. We still end up with our only option of TPN. We will just pray that at least some of this formula will go through her intestines. Hopefully enough to keep her stable. Fingers crossed.

As you can probably tell we are really concerned that we are going to put Maggie through all of this and end up in the same place we are already in. Please pray for Maggie, that she will be able to do well with this sedation and that once we start to feed her things will go through well. We appreciate all of the nice comments and prayers being said for Maggie. One commenter mentioned a formula that her son is on. We appreciate that and we will be talking to our doctor about that tomorrow to see if he thinks that will work. Thank you!!